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Qualitative Observational Study

What is the qualitative observational study?

The nAMD Barometer Leadership Coalition initiated a qualitative, observational study, with multi-dimensional analysis to:

  • Understand patient- and physician-specific drivers of low treatment adherence and persistence
  • Identify areas of alignment and divergence between stakeholders 
  • Generate hypotheses as the basis of developing relevant and meaningful interventions to elicit changes in patient behavior and clinical practice


Patient and physician interviews were conducted:

Patients were asked about the information that they received from their treating physician, whether the results of treatment matched their expectations, how nAMD impacts them, and their attitudes to attending treatment and monitoring visits

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Physicians were asked about their patients’ medical history, knowledge about nAMD and attitudes/behavior whilst receiving treatment. Physicians were also asked about any patient support programs that they may have recommended to their patients

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The results of this insightful study add to our understanding of patients’ emotions related to their experience of nAMD and its management, highlighting the varying experiences between individuals. The study concludes that the patients’ voice is vital when considering patient care and management, and how the nature and timing of interventions can improve the experience of living with and managing nAMD.

 

Click here for the full results of this study on the patient voice in nAMD, published in Ophthalmology and Therapy (Talks SJ, et al. Ophthalmol Ther. 2023;12(1):561-575).

 

To find out more, click on the PDF icon to download a helpful summary of the study.

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